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Home Science & Tech

World Haemophilia Day

April 17, 2021
in Science & Tech
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World Haemophilia Day
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In News: World Haemophilia Day is celebrated on April 17,2021. 

About World Haemophilia Day

  • World Haemophilia Day is celebrated on April 17 every year  since 1989.
  • This year is the 30th edition of World Haemophilia Day.
  • To honour Frank Schnabel, his birthday April 17 has been chosen as World Haemophilia Day .
  • This year’s theme ‘Adapting to change; sustaining care in a new world’. 
  • Day observed for bridging together the communities suffering with global bleeding disorder. 
  • Day creating international awareness of haemophilia and inherited bleeding disorders. 
  • This day also helps in raising funds for the patients who cannot afford to have the treatment of haemophilia.

Haemophilia 

  • Haemophilia is an inherited bleeding disorder. 
  • In this rare blood disease blood clotting proteins that are clotting factors are lacking or insufficient in blood. 
  • When one is injured, blood clots normally, but in case of haemophilia a person may bleed for a longer time. 
  • Internal bleeding is life-threatening as it may damage organs and tissues also.

There are three types of haemophilia:

  • Haemophilia A- Lack of blood clotting factor VIII is more common and this happens in 80 per cent of the cases.
  • Haemophilia B- Lack of factor IX
  • Haemophilia C- Lack of clotting factor XI

Causes of haemophilia

  • Caused by genetic mutation which involves genes that code for blood clotting proteins. 
  • 13 different proteins termed; Factor I through Factor XIII are the clotting factors.

The World Federation of Hemophilia (WFH) 

  • Is an international non-profit organization dedicated to improving the lives of people with hemophilia and other genetic bleeding disorders. 
  • It educates hemophiliacs and lobbies for improved medical treatment.
  • 75% of people in the world with bleeding disorders do not know it and do not receive care.
  • The WFH was established by Frank Schnabel in 1963 and has its headquarters in Montreal, Canada. 
  • It has member organizations in 113 countries and official recognition from the World Health Organization.
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Source: The Hindu
Tags: News PaperPrelims

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